There’s potentially good news to share with readers in the fight against an incurable disease that affects as many as 5.4 million Americans. A new drug candidate may be the first capable of halting the devastating mental decline of Alzheimer’s disease, based on the findings of by scientists at the Salk Institute for Biological Studies in La Jolla, Calif.

When given to mice with Alzheimer’s, the drug – known as J147 – improved memory and prevented brain damage caused by the incurable disease. The new compound could be tested for treatment of the disease in humans in the near future, according to researchers.

Because of the broad ability of J147 to protect nerve cells, the researchers believe that it also may be effective for treating other neurological disorders, such as Parkinson’s disease, Huntington’s disease and Lou Gehrig’s disease, as well as stroke.

 Home Instead Senior Care has several web resources to help.www.HelpforAlzheimersFamilies.com we also offer specialized training for our CAREGivers called CARE. ( Changing Aging Through Research and Education) This program also includes free Family CAregiver Training!

For more on “Potential Alzheimer’s Drug,” check out the April 2012 Senior Advisor.

According to the 2012 edition of Alzheimer’s Disease Facts and Figures, published annually by the Alzheimer’s Association, at present, “5.4 million Americans are living with Alzheimer’s disease”; that’s one out of every eight seniors in the U.S.

  In addition, “Payments for care are estimated to be $200 billion in 2012”—a cost that would be even higher were it not for the 15 million Americans providing unpaid care to Alzheimer’s/dementia patients at an estimated annual value of $210 billion.  This report also indicates that, “An estimated 800,000 individuals with Alzheimer’s (or one in seven) live alone…Of those who have Alzheimer’s and live alone, up to half of them do not have an identifiable caregiver.”  Also of potential interest is the section of this report that offers state-level data on Alzheimer’s and other dementias.  

 Link (to “Quick Facts” report overview; this page also offers access to the full report): http://www.alz.org/alzheimers_disease_facts_and_figures.asp#quickfacts

I am excited to announce Elder Rage the book, has been accepted by Audible Books for download exclusively at Amazon http://tinyurl.com/74479pq and Audible http://tinyurl.com/7seo4fm. the Author is honored it is a Book-of-the-Month Club selection receiving 50 endorsements http://www.ElderRage.com/Review.asp, 300+ Five-Star Amazon reviews, is required reading at numerous universities, and considered for a film.

‘Elder Rage’ is the authors true story of caring for her parents, written with LOL humor, to help caregivers cope with and manage their elderly loved ones medically, behaviorally, socially, legally, financially and emotionally. Includes an extensive self-help section and chapter by renowned dementia specialist, Rodman Shankle, MD. Also available in Print and Kindle/Nook eBook formats. Perhaps you know people who could be helped by it. http://www.ElderRage.com

More and more patients are turning to social networks such Twitter and Facebook for health information, according to a survey by the National Research Corporation.

In the survey of nearly 23,000 people in the United States, 41% said they use social media as a source of health care information. For nearly all of them – 94% – Facebook was their site of choice, with YouTube coming in a distant second at 32%. Eighteen percent of the respondentssaid they turned to MySpace or Twitter for health information.

One in four respondents said what they learned on these sites was “very likely” or “likely” to impact their future health decisions.

The respondents who used social media were 41 years old on average. People in households earning more than $75,000 were more likely to use social media for health care purposes than households earning less.

Another survey out this week found that one in four internet users living with a chronic ailment has gone online to find others with similar health condition.

“The internet enables people to help people in a way we couldn’t help each other before,” says Susannah Fox, author of the report by the Pew Internet and American Life Project. “The internet gives people access to not only information, but also to each other.”

Many of the patients who sought out other patients online have rare diseases.

“They say no one really knows what they’re going through except someone in the same situation,” Fox says. “Those personal tips can make all the difference in the world.”

 Most of the patients in the survey also consulted with their doctors.

 “The oft-repeated fear that patients are using the internet to self-diagnose and self-medicate without reference to medical professionals does not emerge,” according to Fox.

So are you more savy , that you are turning to the internet to find answers to your health concers?

Dementia Patients Face Burdensome

 Transitions in Last 90 Days

ScienceDaily (Sep. 28, 2011) — A new study in the Sept. 29, 2011, edition of the New England Journal of Medicine reports that nearly one in five nursing home residents with advanced dementia experiences burdensome transitions in the last 90 days of life, such as moving to a different facility in the last three days of life or repeat hospitalizations for expected complications of dementia in the last 90 days of life.

Such patterns of transitions are burdensome, particularly since the overwhelming majority of family members state the main goal of care is comfort,” said study co-author Joan Teno, professor of health policy and practice at the Warren Alpert Medical School of Brown University and a palliative care physician. “These transitions reflect the inefficiency of our health care system. Similar outcomes could be achieved by keeping these patients in the nursing home setting.”

An important reason for the prevalence of burdensome transitions might be embedded in the way Medicare pays nursing homes, said Brown health economist and lead author Pedro Gozalo. Nursing homes can earn higher payments for patients who have been transferred to a hospital for three days and they may qualify for skilled nursing services paid by Medicare rather than Medicaid upon their return. The current incentives under Medicare and Medicaid encourage nursing homes to send patients to the hospital, he said.

What makes the transitions burdensome, especially for patients with cognitive impairment, Teno said, is that they are often unnecessary, raise the risk of medical errors, and interrupt continuity of care for patients who can experience significant stress and disorientation when they are suddenly removed from familiar surroundings and people. When the patients become upset, their families experience more stress.

Because these financial incentives, market conditions, and the culture of end-of-life care vary by state, so do the rates of burdensome transitions. The authors, who also include researchers fromHarvardUniversityandDartmouthCollege, found that the overall percentage of patients experiencing at least one burdensome transition was 19 percent. State-level rates varied from 2.1 percent inAlaskato 37.5 percent inLouisiana.

“These burdensome transitions are not only bad for the patient, they also drain the federal treasury, hastening the day when the Medicare trust fund runs out of money,” said economist Jonathan Skinner from Dartmouth College, a co-author on the study.

Blacks and Hispanics were also more likely than whites to experience burdensome transitions, the authors found.

 Amiss before dying

To reach these conclusions, the team analyzed federal databases of nursing home and Medicare records accumulated between 2000 and 2007. In all, they found 474,829 patients who were older than 66, had advanced cognitive impairment, and lived in a nursing home 120 days before their death. Of these, 90,228 residents experienced at least one burdensome transition, defined as either a transfer in the last three days of life, returning to a different nursing home than the one they lived in before they went to the hospital, or multiple hospitalizations in the last 90 days of life.

Often these hospitalizations occur even though the condition prompting the hospitalization — pneumonia, urinary tract infection, or dehydration — could easily be treated in a properly equipped and staffed nursing home.

These variations were particularly wide across different geographic areas. InMcAllen,Texas, 25.8 percent of patients had multiple hospitalizations for urinary tract infections, pneumonia or dehydration, compared to only 1.1 percent of patients inGrand Junction,Colo.

The regional rate of burdensome transitions also correlates with other indicators of poor end-of-life care, Gozalo noted. Compared to patients living in the health care markets with the lowest rates of burdensome transitions, those who lived in the regions with the highest rates were three times more likely to have a feeding tube inserted, more than twice as likely to be in the intensive care unit in the last 30 days of life, and more than twice as likely to have developed an advanced pressure ulcer.

Ultimately, Teno said, all of these problems are signs of care gone awry. The best care for a patient with advanced cognitive impairment near the end of life is often to maximize comfort. The burdens of hospitalization usually outweigh the benefits.

“Our research calls for efforts to reform health care payment that create incentives to improve advance care planning and care coordination,” Gozalo said. “Current reform efforts like accountable care organizations that bundle both the hospital and post-acute care payments could begin to address some of these perverse incentives. We need financial incentives to make sure that people are getting the right care in the right place at the right time.”

In addition to Gozalo, Teno, and Skinner, other authors include Susan Mitchell of the Hebrew Senior Life Institute for Aging Research, Julie Bynum at Dartmouth Medical School, and Denise Tyler and Vincent Mor of the Brown University Program in Public Health.

The National Institute on Aging funded the research.

Burdensome transitions in the last three months of life. Nationally, about 19 percent of nursing home patients with advanced dementia experience a burdensome transition — transfer to another nursing home, unnecessary hospitalizations — in their last three months. The percentages vary widely among the states. (Credit: Brown University)

Alzheimer’s Wine Country Memory Walk 2011!.

Hey Check out our video from this years 2011 Walk to End Alzheimer’s!

Did you walk? IF so which walk did you do?

Help family caregivers through holidays

Give family caregivers a gift this holiday season by inviting them to participate in one of the upcoming “Home for the Holidays” webinars. This hour-long informational session provides family caregivers with information on how to help their senior loved ones manage holiday travel, family gatherings, seasonal depression and other issues that can occur during this busy time of year. The webinar will be offered on:

Tuesday, November 15 at noon Central Time

Click the following link to register for this date and time: https://www3.gotomeeting.com/register/316436230

• Monday, December 5 at 7 p.m. Central Time

Click the following link to register for this date and time:

https://www3.gotomeeting.com/register/321591990

The “Home for the Holidays” webinar is the next installment in the Caring for Your Parents: Education for the Family Caregiver^SM support series and is moderated by the Home Instead Senior Care^® network, hosted by the American Society on Aging (ASA) and co-sponsored by the National Family Caregivers Association (NFCA) and the National Alliance for Caregiving (NAC).

The Caring for Your Parents: Education for the Family Caregiver support series is another way Home Instead Senior Care^® businesses across the country are building trust in communities and supporting clients and their families.  

Join the effort to detect Alzheimer’s early

The Home Instead Senior Care^® network has joined the Alzheimer’s Early Detection Alliance (AEDA) in a nationwide effort to educate people about the warning signs of Alzheimer’s disease and the importance of early detection.  The AEDA is a group of corporations, nonprofits and government entities under the leadership of the Alzheimer’s Association dedicated to making a difference in the fight against Alzheimer’s disease.

There is no cure for Alzheimer’s disease and no way to prevent it. Early detection allows those living with the disease – and their families – time to plan for the future. The Alzheimer’s Association created the following list of warning signs for Alzheimer’s disease and related dementias. Every individual may experience one or more of these symptoms in varying degrees:

1. Memory changes that disrupt daily life
2. Challenges in planning or solving problems
3. Difficulty completing familiar tasks
4. Confusion with time or place
5. Trouble understanding visual images and spatial relationships
6. New problems with words in speaking or writing
7. Misplacing things and losing the ability to retrace steps
8. Decreased or poor judgment
9. Withdrawal from work or social activities
10. Changes in mood and personality

If you notice any of these signs in your senior clients, contact the client’s family members immediately.

To learn more about the 10 signs of Alzheimer’s disease, contact the Alzheimer’s Association at www.alz.org/10signs or 877-IS IT ALZ (877.474.8259).

The Elder Care Radio Show – August 2011

KSRO 1350 AM Fridays – 12:30 – 1:00 p.m.

KNEW 910 AM Saturdays – 8:30 – 9:00 a.m

Do older adults disengage as they get older? It may seem that way if it’s hard to get Mom to go out and do things like she used to.  Experts explore the topic of QUALITY OF LIFE in August.  We’ll discuss the importance of helping people connect with a sense of purpose and meaning – even, and especially, when there are health issues or cognitive impairments that compete for “attention.” I hope you will give yourself a 30-minute break each week to tune in to the live show or to a podcast. Take good care, Kira Reginato

Nina Herndon, MA, CMC
Care Manager and Principal of Sage Eldercare Solutions
What can quality of life (QOL) mean if you’re limited physically or mentally?  Nina will share stories of clients who are non verbal, have Alzheimer’s, have physical challenges, and have found interests adapted to them that have returned QOL to them. Learn to build a quality of life plan and/or a therapeutic activity kit for your loved one.

Julie Ann Anderson, Owner
Home Instead Senior Care
What can quality of life mean if you’re living alone?  Julie Ann will fascinate you as she explains their LifeCatching Program, a way to record personal histories to share with others.  She will entice you to enter the Craving Companionship Recipe Contest, too.
 

  Dr. Michael Fraga, Neuropsychologist
Neuropsychological Associates
What can quality of life mean if you have a brain injury, whether from a bicycle accident, stroke or disease?  Dr. Fraga will tell us about his amazing work with patients and the improvements they make to increase their quality of life and regain independence.
 
  

Dorothy McReynolds, Admissions Director
Golden Living Center, Petaluma
What can quality of life mean if you’re in a facility?  What can you expect from an excellent facility?  Dorothy will tell you how their staff goes the extra mile in their “Life’s Simple Pleasures Program.”
Special guest, Diana Gruhl, MSW, will talk about her Elder Active Program.
 
THE ELDER CARE RADIO SHOW THANKS ITS SPONSORS:
SearchSeniorLiving.Com • Dr. Michael A. Fraga, Neuropsychologist • Brookdale Senior Living •
Arcadia Home Care and Staffing • Golden Living Centers • Home Instead Senior Care • Institute on Aging •
Jewish Home of San Francisco • Lifeline Personal Response and Support Services • Dr. Thomas Yatteau, Concierge Medicine • Reliable Caregivers

Happy Monday Morning!

 As CAREGivers caring for seniors in our community, every day we are reminded of no matter how great or small our acts of kindness or helping helping hands enabling older adults to remain independant in their homes… we can make a difference every day!

Here is another great thing I found in this ever shirking Internet world that I thought I wanted to share with you all today.I hope you enjoy these positive words of encouragement…because there are days we all can use some!

remember you have no idea the impact just a smile can make on a strangers life!

Monday Mojo: Today I Will Make A Difference
 
By Tom Tognoli | July 25th, 2011

This week, I’m pleased to bring to you some “guest MOJO,” from our very own J. Shoop.

J. Shoop as one of Intero Real Estate’s  top producing Area Sales Managers for Western Bancorp, he is also an author, coach, and aspiring professional speaker. His first co-authoring project is set to be released on July 15th, and is available now on Amazon.com!
We welcome J’s insights for this week’s installment of Monday Morning MOJO!

Every day we are faced with a multitude of choices.

In my opinion, one of the greatest freedoms human beings enjoy is the freedom to choose our thoughts. We can choose to focus upon and think about what’s right in our world, or we can choose to focus on what’s not.

One of my favorite inspirational authors, Max Lucado, wrote a book over 15 years ago called “On The Anvil.” The excerpt below is from his book.

Today I will make a difference. I will begin by controlling my thoughts. A person is the product of his thoughts. I want to be happy and hopeful. Therefore, I will have thoughts that are happy and hopeful. I refuse to be victimized by my circumstances. I will not let petty inconveniences such as stoplights, long lines, and traffic jams be my masters. I will avoid negativism and gossip. Optimism will be my companion, and victory will be my hallmark. Today I will make a difference.

I will be grateful for the twenty-four hours that are before me. Time is a precious commodity. I refuse to allow what little time I have to be contaminated by self-pity, anxiety, or boredom. I will face this day with the joy of a child and the courage of a giant. I will drink each minute as though it is my last. When tomorrow comes, today will be gone forever. While it is here, I will use it for loving and giving. Today I will make a difference.
I will not let past failures haunt me. Even though my life is scarred with mistakes, I refuse to rummage through my trash heap of failures. I will admit them. I will correct them. I will press on. Victoriously. No failure is fatal. It’s OK to stumble…I will get up. It’s OK to fail…I will rise again. Today I will make a difference.
I will spend time with those I love. My spouse, my children, my family. A man can own the world but be poor for the lack of love. A man can own nothing and yet be wealthy in relationships. Today I will spend at least five minutes with the significant people in my world. Five quality minutes of talking or hugging or thanking or listening. Five undiluted minutes with my mate, children, and friends.

Today I will make a difference.

I’d like to encourage you to start each day reading aloud the words above. I assure you that you will notice an immediate impact in your attitude, and it will fortify you for the day ahead.

Thank you,

J. Shoop

 ~ so well said! Thank you for sharing your wise words & positive insight  to Tom  Tognoli from Intero Real Estate & J.Shoop of Western Bancorp. Happy Monday everyone!!